寻找主动脉瓣狭窄的先心宝宝

无助的妈妈

<p><font color="#0000ff">宝宝快三周岁了，主动脉瓣狭窄，跨瓣压差64mmHg，去儿中心查过两次，徐志伟主任说进行瓣膜成形术，但风险较大，可能引起严重返流，我们很犹豫，想再等等，又怕错过最佳手术期，想找此类宝宝的爸爸妈妈们交流一下。</font></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">仪器型号：</span><span lang="EN-US"><font face="Times New Roman">Philips Sonos 5500<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span></font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">探头频率：</span><span lang="EN-US"><font face="Times New Roman">2-4MHz</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">，</span><span lang="EN-US"><font face="Times New Roman">3-8Hz<span style="mso-spacerun: yes;">&nbsp; </span></font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">检查途径：经胸</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">检查项目：二维、</span><span lang="EN-US"><font face="Times New Roman">M</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">型、彩色、多普勒</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">图像质量：</span><span lang="EN-US"><font face="Times New Roman">B</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">M</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">型超声心动图（厘米）</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">LVDd<span style="mso-spacerun: yes;">&nbsp; </span>3.0<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>RVDd<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp; </span>LVIVSd<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>LVPWd<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>0.4<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>Ao<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>1.36</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">LVDs<span style="mso-spacerun: yes;">&nbsp; </span>1.7<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>RVDs<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp; </span>LVIVSs<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>LVPWs<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>0.9<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>LA<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>1.81</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">心功能</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">LVEF<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>82%<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>LVFS<span style="mso-spacerun: yes;">&nbsp; </span>43%</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">二维超声（平方厘米）</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">LA<span style="mso-spacerun: yes;">&nbsp; </span><place wst="on"><city wst="on">LV</city></place><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>RA<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>RV<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>MRA<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>TRA</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">频谱多普勒超声（米</span><span lang="EN-US"><font face="Times New Roman">/</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">秒）</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">AAo<span style="mso-spacerun: yes;">&nbsp; </span>3.99<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>Dao<span style="mso-spacerun: yes;">&nbsp; </span>1.2<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>LVOT<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>RVOT<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>MPA<span style="mso-spacerun: yes;">&nbsp; </span>1.0</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">MV<span style="mso-spacerun: yes;">&nbsp; </span>1.2<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp; </span>TV<span style="mso-spacerun: yes;">&nbsp; </span>0.8<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span></font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">跨主动脉瓣跨瓣压差</span><span lang="EN-US"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>64mmHg</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">彩色多普勒超声</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">MR </font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">轻微</span><span lang="EN-US"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>AI<span style="mso-spacerun: yes;">&nbsp; </span></font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">阴性</span><span lang="EN-US"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>TR</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">轻度</span><span lang="EN-US"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>PI<span style="mso-spacerun: yes;">&nbsp;&nbsp; </span></font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">轻微</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">心房水平</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">无分流</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">心室水平</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">无分流；</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">大动脉水平</span><span lang="EN-US"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp; </font></span></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">无分流</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">超声所见</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">心脏位置及连接正常，房室腔无明显扩大，左室稍肥厚。主动脉、肺动及无增宽。主动脉瓣呈三叶，瓣膜增厚，回声增强，开放活动受限，主动脉瓣环</span><span lang="EN-US"><font face="Times New Roman">1.22cm</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">，主动脉流速</span><span lang="EN-US"><font face="Times New Roman">3.99m/s</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">，压差</span><span lang="EN-US"><font face="Times New Roman">64mmHg</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">，余瓣膜开放活动正常。房隔完整，室隔完整。左位主动脉弓。</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">提示</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">主动脉瓣狭窄（压差</span><span lang="EN-US"><font face="Times New Roman">64mmHg</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman';">）</span></p><p></p>

毛毛

帮顶

毛毛妈

<p>你好。我的孩子也是<span style="FONT-FAMILY: 宋体; mso-ascii-font-family: 'times new roman'; mso-hansi-font-family: 'times new roman';">主动脉瓣狭窄，7岁了，正在寻医。平时没有症状，医生说定期复查。我每天上论坛，也参加了先心QQ群。先心病这种情况不多。您的孩子现在情况怎样？我的QQ764319025，希望可以交流</span></p>

tata3

宝宝现在14个月,5个月前做过介入术进行主动脉瓣扩张. 术后3个月复查, 医嘱再过3个月再去复查, 有可能还要再扩. 但孩子平时看不出有任何症状, 很担心在不恰当的时间做了过度的矫治. 医生说迟早是要换瓣膜的, 也不排除做ROSS手术; 现在只是走一步看一步. 由于这种病比较少, 心超的描述每次都不太一样.那到医生那里,医生都说前后的数值都不是同一标准,不具有可比性. 敢问这样检查还有什么意义. 希望在这里能与同样病情的家长交流. 祝大家的宝宝早日康复!